Past

The Cure Sickle Cell Initiative is a collaborative, patient-focused research effort designed to accelerate promising genetic therapies to cure sickle cell disease. The Initiative considers non-traditional ways to advance research and brings together the...

This is a web-based resource that aggregates, secures, and stores deidentified patient information from 12 different registries for rare diseases (5,277 patients with 178 different rare dieseases) all in one place. This platform allows for the wider...

NIH Commons Funds PI ($49K)

NIH Commons Funds PI ($50K)

NIH BD2K Admin Supplement 3U54HG008540-03S1 Co-investigator (PI: Cooper Greg, University of Pittsburgh) The Center for Causal Modeling and Discovery of Biomedical Knowledge from Big Data (CCD) and the Patient-centered Information Commons (PIC-SURE) will...

Amazon Web Services Research Grant EDU_R_FY2016 PI $55K To handle increasing data volumes and potential new sources of data, and to promote patient engagement, we intend to conduct a pilot study that involves hosting this infrastructure on a paradigm...

NHLBI/NIH 3U01HL121518-02S1 Co-Investigator (PI: Mandl/Abman) We will enhance a registry of children with pulmonary hypertension by improving the quality of data on medications and adverse events. Our approach leverages uniquely valuable data from...

Amazon Web Services Research Grant EDU_R_FY2015_Q2_HarvardMedicalSchool_Avillach-NEW PI $100K To handle increasing data volumes and potential new sources of data, and to promote patient engagement, we intend to conduct a pilot study that involves hosting...

NIH BD2K Admin Supplement 3U54HG008540 Co-Investigator (PI: Haussler / Kohane / Ohno-Machado) Integrate BD2K RESTful clinical API with GH4GH Genomic RESTful API

NIH BD2K Admin Supplement 3U54HG008540-02S1 Co-investigator (PI: Cooper Greg, University of Pittsburgh) The Center for Causal Modeling and Discovery of Biomedical Knowledge from Big Data (CCD) and the Patient-centered Information Commons (PIC-SURE) will...