NHLBI/NIH Data Fusion - A Self-Scaling, Open Source Registry Advancing Pediatric Pulmonary Vascular Disease Research

3U01HL121518-02S1

Co-Investigator (PI: Mandl/Abman)

We will enhance a registry of children with pulmonary hypertension by improving the quality of data on medications and adverse events. Our approach leverages uniquely valuable data from pharmacies as well as computerized reading and interpretation of free text clinician notes.